Thursday, October 18, 2007

My Mother's Story from Texas Written by Ronee

My mother was diagnosed with DCIS in 1999 and had a mastectomy. We were advised no treatment was needed that she was cancer free. This past August we went in for test because something was going on with her. She has now been diagnosed with metastatic breast cancer, and it has spread to her liver and lungs.

She has been under-going chemo and treatment with the drug herceptin and is showing great improvement. This cancer is not curable only treatable to slow down its progression.

Prayer has been our strength. Cancer shows you so much, and it teaches you tolerance and forgiveness.

Crosbyton, Texas

Nancy's Story from Utah

Four days after my husband, Bill and I returned from our honeymoon, I received a telephone call from IHC with information requesting that I go in for a mammogram. As I was listening to the caller go on about breast cancer awareness, in my head I was saying to myself that a mammogram was the last thing I wanted to do.

I had not been screened while I was in England on a year and a half mission for the Church of Jesus Christ of Latter-day Saints, and I had not gone in for a screening after returning home. So, it had been about two years since my previous screening.

I was not anxious to go in at that time either. In fact, having a mammogram was the last thing I wanted to do! However, when the caller was at the end of her "info-mercial" she asked if she could make an appointment for me to have a mammogram. I heard myself answer, "Yes, how soon can we set it up." I wondered whose voice that was, speaking those words!

An appointment was made for January 16th.....two weeks away. Bill and I went to the hospital, everything was rather routine, and I waited to hear the results. No telephone call, no post card, nothing until the end of January. Then I received a post card stating that there was a problem with the mammogram and would I come in for another one! So, I telephoned the hospital and asked for another appointment....which was for February 6th.

On February 6th Bill and I returned to the hospital for the follow-up. The technician said that it may have been some little movement that did not give a clear mammogram. But, when she finished, she took the film to her director to confirm the x-ray. He came in and reviewed the film with me. He turned the computer screen so that I could see what he was seeing. I had had two lumpectomies before and I knew what clusters of calcification looked like, but there were two black "blobs" in the left breast and I asked what they were. He answered that that was what they were trying to determine.

I then asked what cancer looked like, and he said "pretty much like that" as he pointed to the black blobs. He suggested a needle biopsy to confirm what the blobs were. We made an appointment for the same afternoon and went home for some lunch. Bill gave me a blessing and we prayed together before returning for the biopsy. The worst part of the biopsy....apart from the pain of that very long needle, was the wait for the results.

The biopsy was done on Monday, we had to wait until Wednesday for the results. Bill is an LDS temple worker, and I serve as a Church Service Missionary at the Family History Library on Wednesdays, so it wasn't until 4:30 that I was able to call the hospital for the results. They confirmed that it was cancer.

I then began the search for a surgeon, a hospital, a plastic surgeon, anesthesiologists, etc. that would be within my insurance coverage. I was not able to set up the surgery until March 15th of 2006. Surprisingly, it was done as an out-patient surgery! The surgeon found that it was not two little cancerous growths, it was one very large tumor that was folded up like a pancake and so only the two tip-ends of the tumor showed on the mammogram. She performed a complete mastectomy.

Because there were no lymph nodes involved I did not have to undergo any radiation therapy. Then the oncologist asked if I was willing to send the tumor for some further testing to a lab in California. I agree to the testing, knowing that there was a possibility that it would not be covered by my insurance, and would probably cost about $3,500. for the test. When the test came back I was told by the oncologist that the test is rated from one to 100. The closer the score was to 100, the more aggressive the treatments should be. He told me that my score was five! He said that he had never had a score come back that low, and further, that chemotherapy would not reduce my chance of further cancerous tumors! I have been on aromatase inhibitors for the past 19 months and very careful to watch for further lumps.

I know that I am very blessed to have gone through this with these particular results. I know that I am not in the same "league" as other women who have suffered far worse in their battle against breast cancer. I am very appreciative of every effort made to help find a cure, and support others who are still struggling with the aftermath of breast cancer.

Thanks for what you and your organization are doing. Best wishes to you.

Salt Lake City, Utah

Dorothy's Story from New Jersey

I was diagnosed with breast cancer in October 2005. From then on, my life has changed. Not only did they find a mass in my left breast, but also upon routine work up, they found a couple of masses in my left ovary and jejunum.

My doctors were to sure where to begin. It was decided to do surgery on my ovaries first to make sure that my cancer was not a metastasis. Thank God, both tissues came back negative. I still had my breast cancer to deal with. I was devastated. I was one month away from finishing my bachelors' degree in organizational management, and I am a single parent who is the sole provider for my three boys. My oldest was going to college and my youngest was just starting pre-K.

The plan of action was to have chemotherapy first to shrink the mass and then have the mastectomy. After four cycles of full strength chemotherapy and losing all of my hair, I felt like this cannot be happening to me. My first reaction was my life is over. But with the help and support from my family and friends, I pulled through.

Through help and determination, I took my last two classes needed to complete my graduation in between chemo cycles. On May 15, 2006, I graduated from Nyack College with bachelor’s degree in hand!!!

On June 20, 2006, I underwent a radical mastectomy with immediate TRAM breast reconstruction. In September 2006 I completed my last two cycles of chemotherapy. My doctor stated that he treated my cancer aggressively because of the size it was in such a short period of time. I go for my routine mammogram on a yearly basis faithfully. I am just thanking God that it was caught in time.

During this whole ordeal, my finances were dropping and I was getting deeper and deeper in debt. It is my crusade to find out what a person should do when they become diagnosed with a serious illness and they are the sole provider for their family. With God's help, I am still in my home, but still behind with my debt. I was able to utilize some organizations that are out there to offer financial support to breast cancer patients. I try to utilize any support that is out there. Having breast cancer is a struggle and a challenge. It is up to the individual to preservere.

Every chance I get I try to tell women to make sure that they get their mammogram because it can save lives. Being diagnosed with breast cancer is no joke. To this day I am struggling to get back on top. I do not think my life is the same, but I will continue to think positive and move forward. All I can do is take it one day at a time. I feel that God put me here on earth for a reason and he would not put no more on me than I can handle.

I am proud to say that I just participated in the Avon Walk for Breast Cancer, and I will be a guest speaker at a function given by the Department of Health in Passaic County as a survivor of breast cancer and will share my story with newly diagnosed cancer patients.

I don't think I can save the world, but if I can help at least one person who hears my story, I will feel like I have done something. Well, this is my story and I hope that my positive thinking and determination can be shared with others so that they to will know that there is life after breast cancer, and together we can beat it!

West New York, New Jersey

Candy's Story from Florida

Hi, my name is Brittany. I am 13 years old, and I'd like to share my story about my hero, my Mom!!!

On April 13, 2007 my mother was diagnosed with Inflammatory Breast cancer, she tried to stay strong for me but I know she felt her world was falling apart!!

Late at night I would hear her crying it broke my heart. My mom has always been there for me as my mom and my friend. I can go to her for anything. She gives me advice we share good times and bad!! She's been actively involved in all my school activities, she's been my homeroom mom, our chaperone for every event, Girl Scout leader, chauffer, etc. My mom is my provider, caregiver my everything, she always puts me and others before herself asking nothing in return.

My mom went through Chemo (AKA Red Devil)and Taxol I thought it was going to kill her, she was sick everyday all day, but she still worked. Did I mention she cleaned houses for a living? She knew she would lose her hair by the second chemo so she cut 19 inches of her hair off and gave it to Locks of Love, she said she wanted a child to have her hair so the child could feel good!!

On July 17,2007 my mother had a Masectomy of her right breast and all the Lymph Nodes under her right arm. She had two drains in for four weeks. She had to be off work for two months which added to her worries because if she doesn’t work she doesn’t get paid. She's started radiation and say's she feels like she's been thrown into a deep fat fryer.

It hurts me to see my mom suffer I know it's taken a toll on her and radiation isn’t over. Mom still has two more surgery's to go into next year. It’s been a Long six months of watching her sick, tired, and suffering. Yet, she tells all her friends, family and ladies she meets the importance of checking yourself and having yearly exams. She says if she can save or help one person everything she has gone through was worth it. I truly am the luckiest kid to have her as my mom.

Tampa, Florida

Candace's Story from Ilinois

“My Loved One’s Breast Cancer Story”

“Sugar and spice, and everything nice, that’s what little girl’s are made of. All dressed up in pink, who’d ever think, one could be so beautiful? And she was! My daughter, Candace Michelle, made her debut on a warm August morning. She is forty-three years old now, and we’ve shared many special occasions. However, I never dreamed we’d share the breast cancer story, with the Pink Ribbon emblem.

The early 2000’s found me engrossed in being asked to join the many other volunteers in the walk campaign for the American Cancer Society. I readily accepted. I had lost my maternal grandmother to colon cancer some years earlier.

Candace is the mother of eleven children. Her hubby and she had been divorced several years before his passing in July of 2007. It was during the time of preparation for his burial that I learned, from my sister, of Candace’s illness.

I knew she had been quiet and restless, moving from Illinois to Georgia, then finally to Florida. Not mentioning a word about her suffering! She didn’t seem to know what to do or where to go.

As I reflect back on those times now, I have to wonder what my reaction would have been had I known, that the moves, the uncertainty was all due to her illness.

Having settled in Florida, my native home, with my sister, where she decided to undergo treatments, she returned to Illinois for her husband’s burial. As news of his passing reached my sister in Union City, Georgia, she called me regarding final arrangements for him.

It was during the course of this conversation, that she said to me, “Sis, I think you ought to know, some family members are hesitant about telling you, but Candace has breast cancer.” My response to the news, escapes my memory at the moment. Perhaps I’ll ask my sister, Ruby how I responded, in due time, after this is all over.

I can only imagine feeling shocked and stunned. The same numbness that I’d felt for weeks now, concerning her loss. And now, it was starting all over again. Like a piece of ice, that was almost melted, or a body that was nearly thawed out, then, another jolt of power and it freezes all over again.
I continue with the motions and the emotions of living, only because I believe in the Supreme Power of God! Candace, when asked about her illness, replied simply, “Who told you?” I have never seen her look more lovely, and she seemed in very good spirits.

After about a week, she returned to Florida to begin her cancer treatments. I dreaded seeing her go, wanted to be with her all the way. We usually talk each week and sometimes several times during the week. I can tell on occasions that she’s not feeling well. She assures me that it’s the medication. She explains to me the procedures as best she can.

The treatment center is about 60 miles from our home village. Different family members drive her to the center. There have been times when she was late for an appointment due to car trouble. My sister, her daughter, other family members and friends have been very supportive of her during this ordeal. I would say, totally supportive.

What hurts the most, is recalling all the moves, she became homeless when her power was disconnected, water shut off and not sharing her secret of breast cancer.

As she prepares for surgery in the next few weeks, these thoughts, I’m sure, will be uppermost in my mind. I’ll never forget “our” breast cancer experience, or its little pink symbol. Hopefully, this Christmas, I can purchase her several of the Breast Cancer Awareness gifts, all wrapped in different packages for her to open. At first glance, hopefully, she’ll notice the pink ribbon, and the message that a portion of its cost will be donated to Breast Cancer Awareness.

I walked with my son in the 90’s for St. Jude’s Children Hospital in Memphis, Tennessee. My wish is that “our” experience will lead her toward joining the fight against breast cancer. For wining her bout, isn’t what it’s all about; we need to knock this disease out!

Urbana, Illinois

Donna's Story from Tennessee

Cancer. It’s a scary word. “I have cancer” are even scarier words. At the age of 40, I went for a routine mammogram, soon after I was contacted by my doctor. Now when the doctor calls you personally, it’s serious. I was told there were some micro calcifications detected and I would need a biopsy and also told that only 20 % of these are malignant.

I underwent the biopsy, but the calcifications were so small they were breaking apart before they could get them into the Petri dish. In order to get a more definite diagnosis I was scheduled for another more invasive biopsy. This biopsy showed there were cancer cells in the duct better known as DCIS, Ductal Carcinoma InSitu.

Ductal what? Carcinoma…..I knew that to mean cancer. After a brief description from the doctor I went to the internet to find out all I could about this diagnosis. After much prayer and research I chose to have a lumpectomy followed by six ½ weeks of radiation and five years of the drug Tamoxifen.

I didn’t have time to be sick. I have a son, Kyle, who at the time was 11 years old. Kyle has Cerebral Palsy from birth and is in a wheelchair. He is dependent on others for his every need. My husband had just had a hernia repair the day I got the diagnosis. He had actually insisted on me calling the doctors office to get the results instead of waiting for my return appointment the next week. He was so sure the report would be good.

When I got off the phone with the doctor and told him the news he was so drugged from the pain medication for his surgery that he said nothing and just went to sleep. I sat in the floor and cried feeling very much alone when the peace of God just came over me and I thought “I have cancer, I can not do anything at this point to change that” so I went into what I call survivor mode. During this time my husband was not able to help with Kyle very much. We do not have family near by, so I felt an urgency to return to as “normal” a life as I could.

My faith in God gave me the strength to endure what I went through with cancer. I had tried to take care of myself before the diagnosis with diet and regular exercise and I honestly believe it helped me to recover as quickly as I did. I returned to work at my part time job a week after the surgery and walked to the hospital across the street every day for the radiation treatments.

I didn’t look “sick” and didn’t feel “sick”, but I had a disease in my body that had to be killed, this ugly scar where a part of my right breast used to be and a fear of the cancer returning that I had to deal with.

The hospital where I had the radiation treatments has a tradition that after your last treatment you get to ring a giant ships bell that can be heard all over that floor of the hospital. When we would hear the bell we knew somebody had finished their treatments and everybody would stop and clap and cheer. That bell sits on the counter at the end of the nurses’ station where I could see it every day I came in. I could not wait to ring that bell!

The last day I was able to take my son with me, along with some of my coworkers, and I let Kyle help me ring that bell as loud as we could. It was awesome!

That part of the diagnosis was over, now on to fear of a recurrence. It seemed that every time I turned around somebody was telling me about someone they knew whose cancer had “come back”. Every time I heard that I was struck by fear, “what if it comes back”, “what if it is worse next time”, “I can’t die, my child needs me.” One day while listening to the radio I heard the Bible verse of the day “God has not given us a spirit of fear, but of power, and of love and a sound mind.” I decided then I would claim that verse over my life and when I feel the fear of cancer I remind myself of this truth. When I reached the 3rd year as a cancer survivor I breathed a small sigh of relief.

Then, this year I celebrated my 5th year as a survivor, which is a huge milestone, and breathed a larger sigh! The cancer diagnosis touched my life in a way nothing ever could have. I know God has a plan for my life and allowed me to go through that time as an encouragement to others.

I am now a “Reach to Recovery” volunteer through the American Cancer Society where others can see me as a survivor, a healthy thriving woman, an encouragement that there is light at the end of the tunnel that once seemed so dark and bleak. Kyle is now 16 and depends on his Momma for daily care, I can’t let him down!

Jackson, Tennessee

Monday, October 15, 2007

Maria's Story from New York

I am a 46 year old married woman and the mother of three children, ages 15, 17 and 21 from Long Island, New York. I went for my mammography every year. The last week in May of this year, on my routine mammography, they found a suspicious mass, which was then confirmed with a sonogram and then later biopsied.

After going to a few breast surgeon opinions and then having an MRI of both breasts, it was confirmed that I had definitely breast cancer. It was identified as "poorly differentiated infiltrating mammary duct carcinoma". I had a 2.5 cm tumor in the right breast along with 9 affected lymph nodes and a very small tumor in the left breast, which was the very beginning of cancer.

At that point, I had a double mastectomy and lymph node dissection on the right side of the removal of 21 lymph nodes and a sentinel node check on the left side. I found the surgery to be very devastating and painful. I had surgical drains for 2 1/2 weeks. I had temporary saline extenders put in, which are going to be replaced with permanent saline implants in January.

After surgery and before chemotherapy, I had a medi-port inserted surgically for the treatments. I have undergone and completed the first phase of chemo for eight weeks (which were a total of four treatments) which were drugs called adriamycin and cytoxin and I am now undergoing the second part of the chemotherapy, which is a drug called Taxol for twelve weeks, along with a hormone called Herceptin, which needs to be administered for 52 weeks.

The Hormone is needed due to the fact that the tumor was HER 2 positive. After chemotherapy ends, I will undergo 5 1/2 weeks of radiation. My feelings went around in circles of fear, shock, anger, anxiety and depression-in a circle over and over again. It is so hard to lose your breasts and become disfigured and then to lose your hair. At first, I felt like I was completely robbed of my life and then I tried to move on and be strong and fight this as hard as I can.

At this point, I am still on the beginning of the second phase of the chemo. I am trying to be strong and think positive and fight this as hard as I can. I have been very fortunate to have a husband, family and many friends that are very supportive and at my side all the time, and I believe that this is helping me to get through this ordeal in my life at this time.

I'm hoping to get through time and look back at all of this as just a memory in my life. I hope that this makes me a stronger person and a better person. I'm taking my life one day at a time and trying to not sweat the small stuff in life and not to worry about things that are not important. I also hope to help another person get through this when I am completely healed and well.

Floral Park, New York